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Where Do I Begin?

By on May 15, 2016 in Celiac Disease, Talking to Doctors | 0 comments

The last couple of months have been incredibly challenging. After the due date for our child passed, our sadness accumulated to the point of boiling over. There is an unthinkable feeling of emptiness combined with the question of whether we could have done anything to save her. We question ourselves every day as to what went wrong, what we may or may not have done correctly, and where do we go from here? Our first instinct was to make someone pay for this. How could such a thing happen, especially in this day of modern medicine? We talked to people about it, but the reaction was not exactly what we were expecting. Surprisingly, people did not want to talk to us about it, pushing it off as any other tragedy in life. “Have you talked to a professional?,” was the most common question people asked us, as if talking to a professional would make us feel any more complete....

Welcome to MyCeliacWife.com

By on Mar 27, 2016 in Celiac Disease | 1 comment

As the weekend is coming to a close, I’m sitting on my couch writing the first blog post about my wife, Julie, and her struggle with Celiac disease.  Celiac has made a big impact on our lives, bigger than anything we could have ever imagined.  Last year we lost two children, something we’ll never recover from, let alone understand.  Today is our second baby’s due date, so it was exceptionally challenging for both of us. Fortunately, we had family with us to help us cope. We’ve learned over the years that Celiac disease can mean a lot of different things.  Some people have it and don’t experience symptoms.  Others have debilitating intestinal damage that takes years to heal.  Celiac doesn’t present itself as obvious as other diseases, and the damage that’s done can’t be fixed by a pill or surgery.  You literally have to come back to life...

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